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  5. PHELAN-MCDERMID SYNDROME FOUNDATION INC.

PHELAN-MCDERMID SYNDROME FOUNDATION INC. - Florida Company Profile

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Company Details

Entity Name: PHELAN-MCDERMID SYNDROME FOUNDATION INC.
Jurisdiction: FLORIDA
Filing Type: Domestic Non-Profit
Status: Active

The business entity is active. This status indicates that the business is currently operating and compliant with state regulations, suggesting a lower risk profile for lenders and potentially better creditworthiness.

Date Filed: 30 Oct 2013 (12 years ago)
Document Number: N13000009842
FEI/EIN Number 04-3673104

Federal Employer Identification (FEI) Number assigned by the IRS.
Address: 8 SORRENTO DRIVE, OSPREY, FL, 34229, US
Mail Address: 8 SORRENTO DRIVE, OSPREY, FL, 34229, US
ZIP code: 34229
City: Osprey
County: Sarasota
Place of Formation: FLORIDA

Key Officers & Management

Name Role Address
VALCOURT PEARCE CAT Director 10200 Rockville Pike, Rockville, MD, 20852
Blumenthal Rhonda Chief Executive Officer 2630 Bucida Drive, Sarasota, FL, 34232
BLUMENTHAL RONNI Agent 8 SORRENTO DRIVE, OSPREY, FL, 34229
Hackstadt Priscilla Chief Financial Officer 4754 Austin Hills Drive, Suwanee, GA, 30024
Johnson Shira Chie 7635 Trillium Blvd., Sarasota, FL, 34241
Linnehan Diane Chief Operating Officer 9 Meehan Drive, Chelmsford, MA, 01824
Croden Denise President 2658 High Brass Trail, Myrtle Beach, SC, 29588

Events

Event Type Filed Date Value Description
CHANGE OF PRINCIPAL ADDRESS 2021-01-21 8 SORRENTO DRIVE, OSPREY, FL 34229 -
CHANGE OF MAILING ADDRESS 2021-01-21 8 SORRENTO DRIVE, OSPREY, FL 34229 -
REGISTERED AGENT NAME CHANGED 2021-01-21 BLUMENTHAL, RONNI -
REGISTERED AGENT ADDRESS CHANGED 2021-01-21 8 SORRENTO DRIVE, OSPREY, FL 34229 -

Documents

Name Date
ANNUAL REPORT 2025-02-19
ANNUAL REPORT 2024-02-28
ANNUAL REPORT 2023-03-22
ANNUAL REPORT 2022-03-16
ANNUAL REPORT 2021-01-21
ANNUAL REPORT 2020-01-28
ANNUAL REPORT 2019-01-10
AMENDED ANNUAL REPORT 2018-03-08
ANNUAL REPORT 2018-01-16
ANNUAL REPORT 2017-04-10

USAspending Awards / Financial Assistance

Date:
2021-08-20
Link:
View on USAspending
Awarding Agency Name:
Department of Health and Human Services
Transaction Description:
CONSORTIUM FOR AUTISM, NEURODEVELOPMENTAL DISORDERS, ANDDIGESTIVE DISEASES (CANDID) - ABSTRACT THERE IS AN INCREASED PREVALENCE OF GASTROINTESTINAL DISORDERS (GI) IN PATIENTS WITH  NEURODEVELOPMENTAL DISORDERS (NDDS) AND AUTISM.  A DIVERSE SET OF GI CONDITIONS  WITH VERY HIGH PREVALENCE IN THE AUTISM COMMUNITY ARE DEFINED AS FUNCTIONAL  GASTROINTESTINAL DISORDERS (FGIDS) BY INTERNATIONAL CONSENSUS VIA THE ROME IV  CRITERIA, THE SYMPTOMS OF WHICH LIKELY HAVE A NEUROLOGICAL BASIS (2). GI SYMPTOMS  ARE ONE OF THE MAIN DETERMINANTS FOR DECREASED QUALITY OF LIFE IN PATIENTS AND MAY  INCLUDE: GERD, IBS-­-LIKE SYMPTOMS, DYSMOTILITY, CHEWING AND SWALLOWING  DYSFUNCTION, FEEDING DIFFICULTY, GASTROESOPHAGEAL REFLUX, DELAYED GASTRIC EMPTYING,  BILIARY TRACT DISEASE, GAS BLOATING, AND CONSTIPATION (1). THE PREVALENCE OF FGIDS IN  THESE POPULATIONS MAY BE A GROSS UNDER-­-ESTIMATE BECAUSE MANY OF THESE PATIENTS  ARE NONVERBAL AND DO NOT EXPRESS PAIN AND DISCOMFORT NORMALLY (1). FAILURE TO  THRIVE CAN DEVELOP DUE TO FEEDING PROBLEMS AND GROWTH PROBLEMS PERSIST INTO  ADULTHOOD IN SOME DISORDERS. A PERCENTAGE OF INDIVIDUALS WITH NDDS HAVE G-­-TUBES  AND GJ-­-TUBES PLACED TO FACILITATE FEEDING.  PATIENTS ARE OFTEN HOSPITALIZED DUE TO THE  SEVERITY OF SYMPTOMS AND GI SYMPTOM-­-INDUCED STRESS CONTRIBUTES TO INCREASED  SEIZURE FREQUENCY AND SLEEP DISTURBANCE.      THE PROPOSED MEETING “CONSORTIUM FOR AUTISM, NEURODEVELOPMENTAL DISORDERS, AND  DIGESTIVE DISEASES (CANDID)” AIMS TO CONVENE STAKEHOLDERS FROM NIH INSTITUTES,  PATIENT ADVOCACY GROUPS (RETT SYNDROME RESEARCH TRUST, RETTSYNDROME.ORG, DRAVET  SYNDROME FOUNDATION, PHELAN-­-MCDERMID SYNDROME FOUNDATION, PTEN HAMARTOMA  TUMOR SYNDROME FOUNDATION, ADNP KIDS RESEARCH FOUNDATION, DUP15Q ALLIANCE,  ANGELMAN SYNDROME FOUNDATION, SYNGAP EDUCATION AND RESEARCH FOUNDATION,  RING14 USA, INTERNATIONAL FOUNDATION FOR CDKL5 RESEARCH, AUTISM SCIENCE  FOUNDATION, AND AUTISM SPEAKS), AND ACADEMIA IN A COORDINATED EFFORT TO DEVELOP A  SET OF SHORT-­- AND LONG-­-TERM GOALS FOR BOTH BASIC AND CLINICAL RESEARCH IN DIGESTIVE  HEALTH ACROSS AUTISM SPECTRUM DISORDERS AND OTHER NDDS TO INCREASE THERAPEUTIC  DISCOVERY FOR GI DISORDERS IN TRADITIONALLY UNDER-­-FUNDED NEUROLOGICAL RARE DISEASES.   PATIENT ADVOCACY LEADERS WILL PROVIDE NECESSARY AND COMPLEMENTARY INSIGHTS TO THAT  OF CLINICAL AND RESEARCH EXPERTS TO WRITE COMPETITIVE APPLICATIONS TO RELEVANT NIH  ICS, WITH THE POTENTIAL FOR THE CREATION OF CONTENT-­-SPECIFIC INTERDISCIPLINARY RESEARCH  TEAMS.    DURING THE MEETING, WE WILL FORM WORKING GROUPS COMPOSED OF RELEVANT EXPERTS IN  THESE FIELDS, SO THAT AT THE CONCLUSION OF THE CONFERENCE, MOMENTUM FOR THESE GOALS  CAN CONTINUE. SPECIFICALLY, WE AIM TO (1) BEGIN THE DEVELOPMENT OF A CATALOG OF  EXISTING CLINICAL AND GENETIC DATA REPOSITORIES MAINTAINED BY INDIVIDUAL  ORGANIZATIONS WITH RELEVANCE TO EXPLORATORY RESEARCH INTO DIGESTIVE DISEASES IN THE  AUTISM AND NDD COMMUNITY, (2) PUBLISH A SUMMARY OF THE DISCUSSION AND CONSENSUS  IN THE SCIENTIFIC LITERATURE, AND DEVELOP A WEB PAGE AS A RESOURCE FOR SHARED  REPOSITORIES AND FACILITATION OF COLLABORATION, AND (3) INFORM POSTGRADUATE MEDICAL  EDUCATION FOR PEDIATRIC AND ADULT GI FELLOWS FOCUSED ON THE NEEDS OF PATIENTS WITH  ASD.
Obligated Amount:
22200.00
Face Value Of Loan:
0.00
Total Face Value Of Loan:
0.00
Date:
2021-03-20
Link:
View on USAspending
Awarding Agency Name:
Small Business Administration
Transaction Description:
TO AID SMALL BUSINESSES IN MAINTAINING WORK FORCE DURING COVID-19 PANDEMIC.
Obligated Amount:
0.00
Face Value Of Loan:
72175.00
Total Face Value Of Loan:
72175.00
Date:
2020-04-14
Link:
View on USAspending
Awarding Agency Name:
Small Business Administration
Transaction Description:
TO AID SMALL BUSINESSES IN MAINTAINING WORK FORCE DURING COVID-19 PANDEMIC.
Obligated Amount:
0.00
Face Value Of Loan:
72396.00
Total Face Value Of Loan:
72200.00

Tax Exempt

Employer Identification Number (EIN) :
04-3673104
Classification:
Educational Organization, Local Association of Employees, Horticultural Organization, Business League, Voluntary Employees' Beneficiary Association (Govt. Emps.), Mutual Ditch or Irrigation Co., Cemetery Company, Other Mutual Corp. or Assoc.
Ruling Date:
2003-04
National Taxonomy Of Exempt Entities:
Medical Research: Specifically Named Diseases Research
Deductibility:
Type of organization and use of contribution: A public charity. Deductibility Limitation: 50% (60% for cash contributions)

Paycheck Protection Program

Jobs Reported:
8
Initial Approval Amount:
$72,175
Date Approved:
2021-03-20
Loan Status:
Paid in Full
SBA Guaranty Percentage:
100
Current Approval Amount:
$72,175
Race:
Unanswered
Ethnicity:
Unknown/NotStated
Gender:
Unanswered
Veteran:
Unanswered
Forgiveness Amount:
$72,567.95
Servicing Lender:
Truist Bank
Use of Proceeds:
Payroll: $72,172
Utilities: $1
Jobs Reported:
10
Initial Approval Amount:
$72,396
Date Approved:
2020-04-14
Loan Status:
Paid in Full
SBA Guaranty Percentage:
100
Current Approval Amount:
$72,200
Race:
Unanswered
Ethnicity:
Unknown/NotStated
Gender:
Unanswered
Veteran:
Unanswered
Forgiveness Amount:
$72,773.59
Servicing Lender:
Truist Bank
Use of Proceeds:
Payroll: $72,200

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HANSEL L. PITTS, JR, PA, which currently Active, has registered address 8 SORRENTO DRIVE, OSPREY, FL, 34229, US.

8 SORRENTO DRIVE, OSPREY, FL, 34229, US

HANSEL L. PITTS, JR, PA
Domestic Profit
HANSEL L. PITTS, JR, PA, which currently Active, has registered address 8 SORRENTO DRIVE, OSPREY, FL, 34229, US.
HANSEL L. PITTS, JR, PA
Domestic Profit
HANSEL L. PITTS, JR, PA, which currently Active, has registered address 8 SORRENTO DRIVE, OSPREY, FL, 34229, US.

Date of last update: 01 Jul 2025

Sources: Florida Department of State

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